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25 April 2016
Cabaret Follies 23.04.16 Communiqué, photos et liste des lots

La soirée « Cabaret Follies » organisée par le Lions Club de Genève en faveur de la Fondation BLACKSWAN s’est déroulée le samedi 23...

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6 March 2016
Petition: STAND UP FOR SCIENTIFIC RESEARCH ON RARE DISEASES

#RAREvolution

STAND UP FOR SCIENTIFIC RESEARCH ON RARE DISEASES

Official launch March 9, 2016 at the RE(ACT) Congress 2016, International...

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18 February 2016
Cabaret Follies – Lions Club Genève

Sur le thème du cabaret, agrémenté de nombreuses animations et surprises, la prochaine action sociale du Lions Club Genève aura lieu le ...

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Blackswan en bref

The BLACKSWAN Foundation is a Swiss foundation supporting research for rare and orphan diseases. Current Swiss policy has no public funding source for rare and orphan diseases, in spite of being a leader in biotechnology and pharmaceutical research. An orphan disease is one for which there is no active research or medical treatment. These diseases are largely ignored by private and public funders. Likewise, the public is unfamiliar with these diseases. Although these diseases are considered rare, it is estimated that as many as 500’000 Swiss citizens may suffer from a rare disease (7% of the national population), and 35 million Europeans. The principal mission of the BLACKSWAN Foundation is to collect funds to support research on rare and orphan diseases. Another goal of the foundation is to improve public understanding of these diseases.

Utilisation de vos dons

All funds are directed to non-industry funded laboratories conducting pre-clinical and clinical research and to projects promoting research in rare and orphan diseases. All grant applications (funding requests) are peer-reviewed by an international panel of scientific experts.

Our overhead costs are kept to the bare minimum thanks to the contribution of our volunteers and through generous gifts from our partners.

The foundation’s accounts are regularly audited by the competent authority at the Swiss Federal Department of Home Affairs (FDHA).

2013 and 2014

– Beginning of the project “RE (ACT) ...