|Swiss Foundation for Research on Orphan Diseases||Fondation Suisse pour la Recherche sur les Maladies Orphelines|
|Fondazione Svizzera per la Ricerca sulle Malattie Orfane||Schweizerische Stiftung für die Forschung seltener Krankheiten|
Edited by Nicolas Sireau
We are happy to announce the publication of the book “Rare Diseases – Challenges and Opportunities for Social…
The evening was exceptional! Thanks to the fabulous energy spread by Dr. Olivier Menzel, President and founder of the BLACKSWAN Foundation and…
The BLACKSWAN Foundation is a Swiss foundation supporting research for rare and orphan diseases. Current Swiss policy has no public funding source for rare and orphan diseases, in spite of being a leader in biotechnology and pharmaceutical research. An orphan disease is one for which there is no active research or medical treatment. These diseases are largely ignored by private and public funders. Likewise, the public is unfamiliar with these diseases. Although these diseases are considered rare, it is estimated that as many as 500’000 Swiss citizens may suffer from a rare disease (7% of the national population), and 35 million Europeans. The principal mission of the BLACKSWAN Foundation is to collect funds to support research on rare and orphan diseases. Another goal of the foundation is to improve public understanding of these diseases.
All funds will be directed to non-industry funded laboratories conducting pre-clinical and clinical trials. All grant applications (funding requests) are peer-reviewed by an international panel of scientific experts.
Our overhead costs are kept to a minimum through generous gifts from our partners and the contribution of our volunteers.
Foundation accounts are regularly audited by the competent authority at the Swiss Federal Department of Home Affairs (FDHA).
In 2011, our donations financed a research project of the Harvard Medical School on the Athypical Rett Syndrome …