|Swiss Foundation for Research on Orphan Diseases||Fondation Suisse pour la Recherche sur les Maladies Orphelines|
|Fondazione Svizzera per la Ricerca sulle Malattie Orfane||Schweizerische Stiftung für die Forschung seltener Krankheiten|
La soirée « Cabaret Follies » organisée par le Lions Club de Genève en faveur de la Fondation BLACKSWAN s’est déroulée le samedi 23...
Sur le thème du cabaret, agrémenté de nombreuses animations et surprises, la prochaine action sociale du Lions Club Genève aura lieu le ...
The BLACKSWAN Foundation is a Swiss foundation supporting research for rare and orphan diseases. Current Swiss policy has no public funding source for rare and orphan diseases, in spite of being a leader in biotechnology and pharmaceutical research. An orphan disease is one for which there is no active research or medical treatment. These diseases are largely ignored by private and public funders. Likewise, the public is unfamiliar with these diseases. Although these diseases are considered rare, it is estimated that as many as 500’000 Swiss citizens may suffer from a rare disease (7% of the national population), and 35 million Europeans. The principal mission of the BLACKSWAN Foundation is to collect funds to support research on rare and orphan diseases. Another goal of the foundation is to improve public understanding of these diseases.
All funds are directed to non-industry funded laboratories conducting pre-clinical and clinical research and to projects promoting research in rare and orphan diseases. All grant applications (funding requests) are peer-reviewed by an international panel of scientific experts.
Our overhead costs are kept to the bare minimum thanks to the contribution of our volunteers and through generous gifts from our partners.
The foundation’s accounts are regularly audited by the competent authority at the Swiss Federal Department of Home Affairs (FDHA).
2013 and 2014
– Beginning of the project “RE (ACT) ...