FOXG1 Research

FOXG1 Research is a special team of the BLACKSWAN Foundation that supports research on FOXG1 syndrome. In collaboration with the BLACKSWAN Foundation, the FOXG1 Research team works to raise funds and establish a network of researchers who work synergistically to identify innovative therapeutic strategies for FOXG1 syndrome.

What is FOXG1?

FOXG1 Syndrome is a neurological disorder caused by a mutation in the FOXG1 gene, similar to RETT Syndrome. Previously called Brain Factor 1, FOXG1 is one of the first and most essential genes formed during human development. FOXG1 builds the Cerebrum – which controls cognition. Affected patients in most cases, cannot sit, walk, talk and eat without a feeding tube. 87% are epileptic and pharma-resistant.


Research shows FOXG1 plays a role in Autism, Schizophrenia, Brain Cancer and Epilepsy. A cure for FOXG1 will not just help over 300 (known cases) but will help solve brain disorders that impact millions of people.

FOXG1 Research Team

The FOXG1 research team under the BLACKSWAN Foundation’s mission is to:

  • Collect funds for FOXG1 research projects
  • Provide grants for research project on FOXG1
  • Find a cure for ALL FOXG1 children in the world (all ages, all types of mutations, all geographies)
  • Provide equal access to a cure for ALL FOXG1 children in the world

Team FOXG1 Research

Scientific Advisory Board FOXG1 Research

More information about the project here.