10 February 2017, Campus Biotech, Geneva, Switzerland
To mark the occasion of Rare Disease Day 2017, Rare Diseases International, the Global Alliance of Rare Disease Patients, in partnership with the BLACKSWAN Foundation, the Swiss Foundation for Research on Orphan Diseases, and EURORDIS – Rare Diseases Europe, organized a unique event to join people living with a rare disease and policy makers for face-to-face discussions.
The event is the first of its kind to be organised in Geneva and gathered international experts in the fields of public health, human rights, epidemiology, scientific research and patient advocacy to discuss why and how rare diseases should be included in the global health agenda.
Event under the Patronage of the Federal Councillor Alain Berset, Head of the Federal Department of Home Affairs
Statement of Dr Tedros Adhanom Ghebreyesus, candidate for WHO Director-General 2017 and Minister, Special Advisor to the Prime Minister of Ethiopia
« No country can claim to have achieved universal healthcare if it has not adequately and equitably met the needs of those with rare diseases »
Helen Clark, Administrator of the UN Development Programme