Press

Press articles

04/11/2016, Tribune de Genève: Rencontre avec Sergio Bianchini – Dans le sillage de “Papillon” (I AM RARE)

15/07/2016, Harvard Business Review: The BLACKSWAN Foundation RE(ACT) Community – An international example of value innovation related to the world of scientific research of rare diseases.

21/03/2016, Tout l’immobilier: Une soirée joyeuse pour lutter contre les maladies rares

21/03/2016, Tout l’immobilier: Entretien avec le Dr. Menzel: «Les maladies rares concernent une personne sur quinze»

28/02/2016, The independent: Turning point for rare disease research

15/01/2014, HEC Magazine: Se manager pour manager la santé – Olivier Menzel

08/06/2013, Le monde économique: SOIRÉE “RARE NIGHT” Des idées rares, des gens rares pour une cause rare !

06/03/2013, L’Illustré: Les Gens – Générosité rare

03/03/2013, Le Matin Dimanche: Une soirée rare était donnée en faveur des maladies rares. Un gala en or pour BLACKSWAN

01/04/2012, Newsletter de la faculté de médecine, Université de Genève: “Maladies rares: 1 personne sur 17

13/09/2011, Ticino Welcome: “Vogliamo adottare le malattie orfane”

01/03/2011, “ENTRE-NOUS – Journal de l’Association de la Suisse romande et italienne contre les myopathies (ASRIM): “BLACKSWAN, Le cygne noir”

22/02/2011, Cooperazione (Coop) – Incontri: Un biologo dall’animo nobile”

22/02/2011, Tages Anzeiger – MediaPlanet: “Selten, aber nicht allein” (voir page 1 et 10)

01/02/2011, Pulsations (Journal des Hôpitaux Universitaires de Genève): “Focus sur les maladies rares”

11/11/2010, La Repubblica: “Design: L’identità visiva della Fondazione BLACKSWAN”

01/03/2010, Ticino Management Donna : “In difesa del brutto anatroccolo”. Dopo anni di indifferenza, oggi la società comincia ad occuparsi delle malattie rare

21/02/2010, Il Caffè:“È una malattia rara ma non muoio”. Passi avanti nella ricerca svizzera contro le settemila “patologie difficili”

Social Media

20/02/2017, Wonderbaby.org: Leaving no one ‘LCA patient’ behind: Rare Diseases International policy event

09/03/2014, Checkorphan.org: Rare Disease Research Focus, Non-research the Story

07/03/2014, AKU Society Blog: RE(ACT) Congress Take Two

16/11/2010, Baseline magazine’s photo

14/11/2010, Misstypo Graphic Design + Typography

Radio / TV

21/11/2013, Interview of Olivier Menzel on One FM

01/12/2010, Interview of Olivier Menzel at the World Orphan Drug Congress in Geneva

Press releases

Geneva, 10/02/2017: Rare Diseases International Policy Event – The right to health: the rare disease perspective.

Geneva, 17/11/2016: RE(ACT)x Switzerland: We Care for Rare – Symposium devoted to Swiss Translational Science on Rare Diseases.

Barcelona, 17/03/2016: Collaboration is the key towards success in rare diseases research #RAREvolution (RE(ACT) Congress 2016) 

Basel, 07/03/2014: Rare diseases: growing interest from research and industry (RE(ACT) Congress 2014).

Basel, 02/03/2012: Rare diseases: patients and researchers must work together more closely (RE(ACT) Congress 2012).

Geneva, 28/02/2010: The inception of the Swiss Foundation in support of research for Rare and Orphan Diseases.