BlackSwan in brief

Rare diseases affect 6% to 8% of the world population and approximately 500,000 people in Switzerland. The majority of these conditions affect children and in three out of four cases have a fatal outcome. The quest for specific drugs is a priority, especially as the effectiveness of certain rare disease drugs has been demonstrated in the treatment of most common diseases.

The BLACKSWAN Foundation was established in Switzerland in 2010 to contribute to the development of research on rare and orphan diseases worldwide. The Foundation supports research on all different types of rare and orphan disease, which makes its vision unique and helps in finding new solutions that can assist a large variety of projects. Besides its funding research mission, the Foundation organizes every two years the RE(ACT) Congress, which became an international reference point for rare disease experts. In five editions, more than 1,500 scientists were able to establish approximately fifty collaborations. Since 2015, BLACKSWAN Foundation has also started an international advocacy and awareness campaign called #RAREvolution to ensure rare diseases are recognized as an international public health and research priority.

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News - more…

24 Aug 2021
RE(ACT) Discovery Institute
Foundation of the RE(ACT) Discovery Institute The RE(ACT) Discovery Institute is a unique, not-for-profit institute that supports innovat...
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22 Jan 2021
RE(ACT) Congress 2021
The sixth edition of the RE(ACT) Congress and the fourth edition of the IRDiRC Conference were held online in a first-time joint eve...
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20 Jun 2020
New Board of Director
More info here...
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23 Jan 2020
BLACKSWAN Foundation @ the WEF
The BLACKSWAN Foundation was invited to the World Economic Forum 2020 #WEF20 to support the NCCR "AcceleRARE" project. AcceleRare is an emp...
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05 Jun 2019
Daniel Lozakovich’s concert in favor of our Foundation
The BLACKSWAN Foundation was on the spotlight at the private violin concert organized by the Collège du Léman with the boarding student Da...
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