Blackswan en bref

Rare diseases affect 6% to 8% of the world population and approximately 500,000 people in Switzerland. The majority of these conditions affect children and in three out of four cases have a fatal outcome. The quest for specific drugs is a priority, especially as the effectiveness of certain rare disease drugs has been demonstrated in the treatment of most common diseases.

The BLACKSWAN Foundation was established in Switzerland in 2010 to contribute to the development of research on rare and orphan diseases worldwide. The Foundation supports research on all different types of rare and orphan disease, which makes its vision unique and helps in finding new solutions that can assist a large variety of projects. Besides its funding research mission, the Foundation organizes every two years the RE(ACT) Congress, which became an international reference point for rare disease experts. In three editions, more than 1,500 scientists were able to establish approximately fifty collaborations. In 2014, the BLACKSWAN Foundation launched the RE(ACT) Community a crowdfunding and a knowledge sharing digital platform that connects researchers, patients and other rare disease stakeholders. Since 2015, BLACKSWAN Foundation has also started an international advocacy and awareness campaign called #RAREvolution to ensure rare diseases are recognized as an international public health and research priority.

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News - more…

05 Jun 2019
Daniel Lozakovich’s concert in favor of our Foundation
The BLACKSWAN Foundation was on the spotlight at the private violin concert organized by the Collège du Léman with the boarding student Da...
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22 Jan 2019
Support research for GliaPharm
Support research for GliaPharm to uncover the metabolic effect of FOXG1 in astrocytes BLACKSWAN Foundation with the team FOXG1 research a...
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22 Dec 2018
La séquence - un thriller qui parle de génétique
Stefan Catsicas, neurobiologiste, professeur à la faculté de médecine et à l'école polytechnique fédérale avant de devenir entreprene...
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13 Sep 2017
1ère action du Lions Club Lausanne - Horizons
6’000 francs réunis pour les maladies rares aussi dites « orphelines » Orphelines parce qu’elles sont abandonnées négligées p...
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10 Feb 2017
Rare Diseases International Policy Event in Geneva
The right to health: the rare disease perspective A-first-of-its-kind event took place in Geneva, co-organized by BLACKSWAN Foundation, ...
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