News

Vendredi 27 juin 2014 (entre 18h30 et 22h) : Un moment rare pour les maladies rares au fil de l'eau ! "Soirée macarons-champagne et buf...

Over the past three days, more than 300 experts from around the world attended the RE(ACT) Congress in Basel to discuss research into rare d...

2nd International Congress on Research of Rare Diseases in Basel (5-8 March 2014) Syringomyelia, Prader-Willi syndrome, glass bone diseas...

...support the BLACKSWAN Foundation! Make some space in your closet for BLACKSWAN by selling your clothes on StyleAvenue.com! The total amo...

We would like to invite you to the fantastic Ice&Fire Charity Gala Dinner Party ! When ? Saturday 30 November Where ? Salle Pitoë...

Edited by Nicolas Sireau We are happy to announce the publication of the book “Rare Diseases - Challenges and Opportunities for Social ...

It is a pleasure to announce the 2nd International Congress on Research of Rare and Orphan Diseases (RE(ACT) Congress 2014) to be held at th...