BlackSwan in brief

Rare diseases affect 6% to 8% of the world population and approximately 500,000 people in Switzerland. The majority of these conditions affect children and in three out of four cases have a fatal outcome. The quest for specific drugs is a priority, especially as the effectiveness of certain rare disease drugs has been demonstrated in the treatment of the most common diseases.

The BLACKSWAN Foundation was established in Switzerland in 2010 to contribute to the development of research on rare and orphan diseases worldwide. The Foundation supports research on all types of rare and orphan diseases, which makes its vision unique and helps in finding new solutions that can assist a large variety of projects. Besides its funding research mission, the Foundation organizes the RE(ACT) Congress every two years, which has become an international reference point for rare disease experts. In eight editions, more than 1,700 scientists established approximately fifty collaborations. Since 2015, BLACKSWAN Foundation has also started an international advocacy and awareness campaign called #RAREvolution to ensure rare diseases are recognized as a global public health and research priority.

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11 Mar 2024
Concert "Les Découvertes musicales" au Temple du Locle
Le Temple du Locle a accueilli des ensembles de musique de chambre des régions neuchâteloise et lausannoise. Les musiciens sont actuelleme...
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04 Mar 2024
QoQa charity campaign - CHF 80,000 for research
On February 29 (International Rare Diseases Day #RDD), QoQa hosted a fundraising event for our Foundation. Thanks to the generous donatio...
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25 Mar 2023
RE(ACT) Congress 2023
Berlin, Germany – 24 March 2023. The seventh edition of the RE(ACT) Congress and the fifth edition of the IRDiRC Conference were held join...
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24 Aug 2022
RE(ACT) Discovery Institute
Foundation of the RE(ACT) Discovery Institute The RE(ACT) Discovery Institute is a unique, not-for-profit institute that supports innovat...
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22 Jan 2021
RE(ACT) Congress 2021
The sixth edition of the RE(ACT) Congress and the fourth edition of the IRDiRC Conference were held online in a first-time joint eve...
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