News

In its first edition (CH-Basel, 29th February - 02nd March), the RE(ACT) Congress brought together almost 300 people in Basel to discuss res...

LA FONDATION BLACKSWAN met en perspective les dons. Les maladies rares peuvent toucher tout le monde. Trois maladies rares sur quatre son...

BLACKSWAN Foundation supports the The Brain Diseases and Molecular Machines 2012 Conference: Longevity, Development and Neurodegenerative di...

LEBER’S CONGENITAL AMAUROSIS Nancy Haas received a wonderful Mother’s Day Present, knowing her son, Corey could play Little League ba...

The Imperial Crown The Imperial Crown is the grand name given to the range of 4000m peaks that encircle the Val d’Anniviers in the Swis...

The EURORDIS Membership Meeting 2011 will be held in Amsterdam, the Netherlands. The purpose and objectives of the Membership Meeting are...

The journal Tages Anzeiger with Mediaplanet published a special edition on rare diseases. The BLACKSWAN Foundation is mentioned, and the pre...

ProRaris organized the first International Rare Disease Day in Switzerland. The event is a huge success. More than 400 people between patien...

The BLACKSWAN Foundation create the RE(ACT) Congress: international congress on research of rare and orphan diseases. The first edition w...

The BLACKSWAN Foundation is present at the Geneva TEDx with the exiting project of our brochure “Visualization of Rarity”, presented by ...